NATIONAL CANCER CHARITIES DIRECTORY
ACC Support UK
For people diagnosed with adrenocortical cancer (also known as
adrenal cancer). This organisation, a collaboration between two
patient groups, provides information and support to patients and
their families via a specialist helpline and also access to
specialist counselling free of charge. There are information
resources available via the website and they also organise face to
face information days in cities across the UK.
AMMF - The Cholangiocarcinoma Charity
The only UK charity dedicated to supporting people diagnosed
with bile duct cancer and to raise awareness of the condition by
campaigning for research into causes, treatment and potential
cures. The website provides comprehensive on what
cholangiocarcinoma is, signs and symptoms and treatment pathways.
There is also a forum available for people living with bile duct
cancer to connect with others.
Anthony Nolan Trust
Originally founded as a bone marrow registry, this charity is
not only dedicated to matching up people who need lifesaving bone
marrow transplants with donors, they also provide support, advice
and information for anyone living with blood cancer as well as
information on bone marrow transplants, stem cell transplants and
what to expect if you need one. They raise awareness of blood
cancers and campaign for access to new treatments on the NHS.
Anthony Nolan also has its own research centre which carries out
research into making transplants as successful as possible by
improving matches and reducing post-transplant problems.
Blood Cancer UK
Blood Cancer UK is a UK based charity dedicated to funding
research into all blood cancers including leukaemia, lymphoma and
myeloma, as well as to offering information and support to blood
cancer patients. Blood Cancer UK's vision is to beat blood
Bone Cancer Research Trust
Though primarily focused on fighting bone cancer by being a
catalyst for research to find a cure for bone cancer, this charity
also supports people affected by bone cancer. They have volunteers
available to talk to patients, provide information on different
aspects of dealing with bone cancer, from signs and symptoms, to
treatment and amputation information.
Bowel Cancer UK
UK based charity that is dedicated to supporting people affected
by bowel cancer. They offer information and advice on all aspects,
from signs and symptoms to living with and beyond bowel cancer.
They campaign for service improvements and fund essential research
into improving prevention, earlier detection and better treatment
of bowel cancers. Bowel Cancer UK also covers anal cancers.
Brain tumour charity solely focused on supporting people
diagnosed with a brain tumour and promoting their wellbeing. The
site advised on signs and symptoms, types of brain tumour and their
treatment as well as practical help and how to live well with a
Brain Tumour Support
This charity is exclusively dedicated to supporting anyone who
has received a brain tumour diagnosis, as well as families and
carers, ensuring that no one has to go through their journey alone.
They provide access to counselling, support and information as well
as the option to join a closed Facebook group to chat with other
people who are living with the same diagnosis
Breast Cancer Now
Breast Cancer Now is a charity in the United Kingdom which was
formed in 2015 by the merger of Breast Cancer Campaign and
Breakthrough Breast Cancer. It is the United Kingdom's largest
breast cancer charity. Its declared "Action Plan" is "by 2050,
everyone who develops breast cancer will
Butterfly Thyroid Cancer Trust
National charity supporting people with thyroid cancer. Offers
the use of a dedicated helpline, virtual group support via email
and telephone contact, a buddy system to help you through the
different treatment stages and access to a wide range of
information on the condition.
CLL Support Association
UK based patient led charity supporting and empowering people
who have a diagnosis of Chronic Lymphocytic Leukaemia (CLL), their
families and carers by providing access to reliable and relevant
information to help them understand their condition and how to cope
with living with it. There is an online community link to enable
CLL patients to connect with others.
Online support communities for people living with Chronic
Myeloid Leukaemia (CML). Run by patients. There is an online forum
for posting messages and queries and an information section that
contains information about clinical trials, treatment guidelines
CUP Foundation - Jo's Friends
Charity specifically founded to raise awareness of Cancer of
Unknown Primary (CUP) and to provide information and support to
people living with CUP as well as their families and friends. The
CUP Foundation has an interactive forum for patients to access to
link with others living with this condition, they have information
on benefits for cancer patients and links to informative
publications that are of interest to CUP patients.
Fight Bladder Cancer
Charity founded and run by bladder cancer survivors offering
information on the signs and symptoms of bladder cancer, support
following diagnosis with the help of a medical advisory panel. They
campaign to raise awareness of bladder cancer and for the
government to fund more research into this condition. There is a
user forum for messages and to make contact with other people
living with bladder cancer.
Jo's Cervical Cancer Trust
UK charity solely dedicated to supporting women who have
received a diagnosis of cervical cancer and their families. They
campaign regularly about the importance of women attending their
smear tests and prevention. They provide information and advice
about the signs and symptoms of cervical cancer and the chance to
ask questions of experts in the field. A helpline and online forum
are also available.
Kidney Cancer Support Network
Patient led charity dedicated to supporting people affected by
kidney cancer, including families and carers. The KCSN offers
information and advice as well as a large online community via
forums and social media. There is information about diagnosis,
treatment and clinical trials as well as news updates and blogs
from other members of the KCSN.
Kidney Cancer UK
Leading UK charity specialising in raising awareness of kidney
cancer and providing support to people who have received a
diagnosis as well as their families. They support research into the
causes of kidney cancer, prevention and early detection as well as
developing new treatments. The charity also arranges their own
health and wellbeing events "Living with Kidney Cancer Days" which
are held in various locations across England and Scotland. Useful
videos are also available on their website in addition to being
able to download publications related to kidney cancer.
This charity aims to ensure that anyone who receives a diagnosis
of blood cancer has access to the right information, advice and
support from diagnosis, through treatment and beyond. There are
various ways they can support patients and their families, either
through their helpline, one to one buddy support schemes, support
groups or via the online forum. They campaign and advocate on
behalf of patients for better funding from the NHS and access to
treatments and drugs. The website also provides downloadable
resources for people to access.
Charity supporting people who have been diagnosed with any type
of blood cancer. They are even able to provide grants to alleviate
financial hardship or to purchase vital equipment. Leukaemia UK
also work to fund vital research into seeking less harmful
treatments and also to improve haematology units for patients.
The only UK charity solely dedicated to supporting people
affected by lymphoma. The charity offers a free telephone helpline
where specially trained advisers are available to listen and answer
any questions about lymphoma. There is also a buddy system in
operation where patients can be matched up with a buddy who has
direct experience of lymphoma and is best placed to understand what
the patient is going through. There are support groups throughout
the UK as well as online forums and access to lots of information
online about the different types of lymphoma, treatment and living
with the condition.
Supporting patients and their families through diagnosis and
treatment of malignant melanoma. They are dedicated to raising
awareness of the disease and undertake fundraising and campaigning
to that end. Their website offers information on different types of
melanoma and FAQS. There is information around clinical trials and
grants available to people living with melanoma.
Specialist charity specifically supporting people who have been
diagnosed with asbestos related cancer (Mesothelioma). The charity
provides information and support to all patients and their families
as well as offering information on seeking legal advice and
compensation following a diagnosis in addition to the types of
benefits that can be claimed.
Mouth Cancer Foundation
The charity aims to support patients diagnosed not only with
oral cancers but also throat cancer and any other head and neck
cancer. They also provide advice and information to families and
carers of patients with any of these cancers. They promote
awareness of the risk factors, signs and symptoms and key causes of
these cancers. There is a community forum on the website to enable
patients to talk to others going through similar pathways.
For anyone living with a diagnosis of myeloma, or their
families/ carers. Expert advice, information and support from a
specialist team including nurse consultations. PEER network also
available allowing patients or their loved ones the opportunity to
chat with other people who have lived similar experiences and can
share stories and provide support. Myeloma UK also fund research
into improving treatments and finding a cure as well as acting as
patient advocates and lobbying for better treatments and
Neuroendocrine Cancer UK
This UK and Ireland based charity is the only charity dedicated
to supporting people with neuroendocrine tumours. There are free
support services available which include the opportunity to consult
with specialist nurses and access to counselling. The website
provides a range of information about this tumour type and an
online community via several Facebook groups to allow patients and
families/ carers to connect with others.
Patient run charity supporting people affected by ocular
melanoma and other types of eye cancer. They aim to provide
reliable and accurate information about signs and symptoms,
treatments and effects of living with eye cancer. There is a
helpline available as well as online support groups and
opportunities for meet ups both regionally and bi-annual national
Orchid is a charity dedicated to raising awareness of male
cancers (testicular, prostate and penile) and funding research into
the causes and treatments of these cancers. A helpline is available
for men to speak to a nurse and they also organise awareness talks
and roadshows across the UK to provide face to face support and
information to anyone affected by one of the three male
Charity dedicated exclusively to supporting women affected by
ovarian cancer. They are not a campaign or research charity.
Support is offered via a range of means: online forums, telephone
helplines, face to face support groups, specific support group for
women under 45, the Ovacome choir etc. The site also provides
information on the signs and symptoms of ovarian cancer and
Ovarian Cancer Action
Organisation providing advice and information to women who may
be worried about ovarian cancer, women who have been diagnosed and
are living with the condition and also to healthcare professionals.
They campaign to raise awareness of the disease and to improve
earlier detection and diagnosis. There is specific information
relating to hereditary ovarian cancer and the BRCA gene. Ovarian
Action also fund vital research including the development of a
screening tool to detect the presence of the disease sooner.
Pancreatic Cancer Action
UK based charity principally campaigning for better awareness of
pancreatic cancer and aiming to improve earlier detection rates
however there is also plenty of information and advice for people
who may be worried about pancreatic cancer or for people who have
had a diagnosis.
Pancreatic Cancer UK
This charity provides expert advice and support to people who
are worried about pancreatic cancer or who have just been
diagnosed. They operate a support line as well as online forums for
discussion. The charity also funds vital research into improving
how pancreatic cancer is diagnosed and treated and lead campaigns
for better awareness of the disease.
Prostate Cancer UK
Charity that supports men living with prostate cancer and the
effects of treatment in addition to funding research into the
causes of prostate cancer, earlier diagnosis and developing new
treatments. Prostate Cancer UK aims to raise awareness among men
and their families and friends to recognise the signs and symptoms,
to get diagnosed earlier and prevent more deaths due to prostate
Roy Castle Lung Cancer Foundation
The UK's only lung cancer charity. They provide information and
support to people to help them understand the signs and symptoms of
lung cancer, how to cope with living with lung cancer and
information about the different treatments that are available. The
Foundation also carries out vital research looking into improving
early detection, treatments and finding a cure. A Stop Smoking
service and patient forums are also available.
The only charity in the UK that is solely dedicated to all types
of sarcoma. Providing support to people who have been diagnosed
with any sarcoma or to those who may be worried about it. They also
fund research into learning more about sarcoma and how they can be
treated. Sarcoma nurses are on hand via the helpline to answer
queries and the site provides useful downloadable factsheets for
Target Ovarian Cancer
UK based charity that works to support women who have been
affected by ovarian cancer, raise awareness of the condition,
improve early detection and diagnosis rates and fund research into
better treatments with the aim of reducing the number of women who
are dying from this condition. Visitors to their website can find
lots of information about ovarian cancer, downloadable resources
and can contact the nurse led support line if they need to talk to
someone about their diagnosis or concerns.
Teenagers and Young Adults with Cancer
Provides cancer information for people aged 13 to 24. They fund
and support research into teenage and young adult cancers.
Teenage Cancer Trust
Supporting teenagers and young adults aged between 13 - 24 who
have been diagnosed with cancer. TCT has 28 specialist units in NHS
hospitals across the UK where young people can go for treatment.
Outside of these units, the Trust is rolling out Nursing and
Support Services across the whole of the UK, where specialist
nurses can visit young people with cancer in their local hospital
or even at home. The TCT website hosts a wealth of information for
young people worried about cancer, either their own or if a friend
has cancer. Hair4U is a project set up to ensure that all 13 - 24
year olds living with cancer have access to a free real hair
A Young Person's Guide to Cancer is a book that includes all
kinds of handy information covering the medical, the emotional and
the practical aspects of a cancer diagnosis and can be downloaded
for free from the website.
The Brain Tumour Charity
The world's leading brain tumour charity. This UK based charity
are dedicated to supporting people of any age diagnosed with a
brain tumour and their families by offering options for both face
to face and virtual support. They have access to a range of support
groups across the country as well as closed Facebook groups where
people living with a brain tumour can "meet" in a safe space. An
information and support line is available weekdays as well as many
information resources on the website. The charity also funds
research into improving treatments for brain tumours with an aim to
find a cure.
The Eve Appeal
UK charity that raises awareness around the 5 gynaecological
cancers (womb, ovarian, cervical, vulval and vaginal). They also
fund research into improving earlier detection, methods of risk
detection and screening. The charity offers advice and support and
the opportunity to consult with a specialist gynaecology nurse.
The Oesophageal Patients Association
The OPA is a charity dedicated to helping people and their
families to cope with oesophageal or gastric cancer. They provide
support and information from diagnosis, through treatment and
beyond. Of note, although gastric cancers are stated as part of the
area they cover, the information and patient stories are mainly
focused on oesophageal cancer. The OPA organise support meetings
across the country and also offer a helpline for information
however they do not give medical advice.
The Robin Cancer Trust
The only UK charity dedicated to raising awareness of germ cell
tumours, primarily among young men and women; the importance of men
checking their testes and looking out for signs and symptoms of
testicular and ovarian cancers as germ cell tumours are more
commonly found in the reproductive organs.
Throat Cancer Foundation
UK charity dedicated to raising awareness of throat cancer -
causes, signs and symptoms and treatments. They support research
aimed at improving prevention and earlier detection and provide
expert advice and information to patients and their families on a
wide range of topics from treatment, to financial advice and
Young Lives vs Cancer
Young Lives vs Cancer is a charity that helps children and young
people (0-25) and their families find the strength to face whatever
cancer throws at them.
Tumour sites with no dedicated UK charity:
- Liver cancer. (Refer to the British Liver Trust who support
and advise on all liver conditions - https://www.britishlivertrust.org.uk/).
- Stomach cancer. (No dedicated site for this type of cancer
however see The Oesophageal Patients Association, above, who can
support people with gastric cancers).
- Gallbladder cancer (Again, as with stomach cancer, the
Oesophageal Patients Assocation can support people with this type
'The treatment I have received from all the staff has been
excellent and could you extend my thanks to them all. A very
thankful and relieved patient'.
Patient, Dermatology Outpatients Department, University Hospital
of North Durham